My daughter was well up til November 2006 (9yrs) when she had a vomiting bug for a few days and as she was getting better, this changed to feeling well, but vomiting all solids and fluids, no matter quantity or type, in small, highly frequent partly digested manner-NO effort to the vomiting, she would feel it coming and it would pour out of her mouth. No other signs of normal vomiting bug otherwise. Over the years, she had this happen after having any form of virus, including the flu or stomach bug. Regular visits to the doctor and many things trialled, with only a little success from wafers but then they stopped working.
February 2011- longest period of vomiting so far-8 weeks constant, without relief. Kinesiology worked finally this time in stopping the vomiting.
March 2011 – referred to Specialist, who did endoscopy and said he couldn’t find anything so must be psychological.
Vomitting still occurring and no help from medical world so far, so accessed alternative therapies, which treated with crystal, channelling and kinesiology, which ended up decreasing vomiting within a few weeks. *8 weeks of vomiting.
September 2011 – bad case of the flu and as the flu got better at the end of the week, the vomiting began…and hasn’t stopped since.
She has suffered disgraceful treatment, been admitted to the mental health ward for 2months, been shadowed and had all her human rights privileges taken away (in the name of having an eating disorder) and I fought them, pleaded, called politicians, health government, head of hospitals, specialists, lawyers. No one would help her.
Miraculously one day, I googled with the right words to bring up the clinic you speak of and found the symptoms were exactly matching to my daughters. It was then a fight to get her GP and Paediatrician to refer her to our wonderful specialist here in Australia who recognises Rumination. With a 12mth waiting list though, we were in despair, however after viewing my daughter’s case, the specialist, Dr Frances Connor, called me direct and has supported us ever since. The trouble now is that my daughter’s health and life has diminished so much that she is in hospital weekly for the drip and in ICU/emergency far too much. We are not fortunate to have anywhere that provides the program for Rumination, and so have been attempting to pool together resources to make this happen for my daughter in Australia. I despair this will ever happen and she is scheduled for a PEG (tube into her stomach to have night feeds). This is no way for her to live when I know there is a solution.
I have since lost 2 full time jobs due to time and calls etc taken from work. She has on the average, 2 blood tests each week (if not more), monthly stays in hospital and lately, it has been weekly. She has been poked and prodded with more than 1000 blood tests and more than 50-100 cannulas and there seems to be no end in sight for her. She is constantly so starving that her belly aches for food. She is so tired of being sick and tired. Sadly, as a single mum I have no funds to do anything for her –what I pray and am putting out there, is for someone who sees this who may have the position in life to fund my daughter’s trip and treatment to the Nationwide Children's Hospital in Columbus, Ohio. I know it’s a long shot, but I fear this is her only hope. She believes she probably won’t live to see 20 and I think she may be right.
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