Update on my girls life-booked for the Percutaneous endoscopic gastrostomy, or fondly known to her friends as PEG. The PEG tube will be passed into her stomach through the abdominal wall. Night feeds will sustain her, so really putting a load of hope on the effectiveness of this to allow her to stay out of hospital and get on with her life - so to say. Scary for her though and she is going through the trauma of fear and the unknown. It's an awful thing to have, but it will hopefully give her some relief. Won't help with the constant hunger and supposedly won;t help at all with the rumination, but maybe this is the break we have all been waiting for to give her some relief and possibly a chance to do things that will take the focus off the symptoms.
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